The Truth about ALS

 I am sure that the number one problem that all families of ALS patients face is Communication. Not only because ALS affects speech but also because most people don't know what to say to a person who was "normal" until now but is sick and disabled suddenly. This leads to situations of awkwardness, stress, despair, weird silence, or simply confused looks or blank stares. So I decided to jot down some tips from my own experience. Some of these might seem like stating the obvious, but trust me they are not so obvious. But they are very much doable. Be in a visible range while speaking  The patient's range of neck movements maybe limited. Also the patient can gauge from the other person's expression whether the said thing is understood or not. Be at patient's eye level  When you are stuck to a chair or bed the whole time, your perspective of looking at the world literally changes. It would make things a lot easier if I didn't have to look up all the time while

 The very first thing that I bought for myself from my first salary was a red lipstick from Colorbar. I was always interested in make up. In fact as a kid I wanted to be an air hostess because they got to wear make up everyday. This lipstick was the first of many as I carefully curated my vanity bag after diligently perusing several beauty blogs and vlogs. Then came the pink lipstick in cream finish from Lakme and later the crayon in matte finish which was all the rage then. The foundations followed along with the eye shadow palettes one each for summer time bright looks and deep autumn looks. You name it, I had it. Concealer, highlighter, mascara, eye liner et al. I slowly graduated to M.A.C. And Sephora with time. Now my vanity bag is gathering dust in my wardrobe. The last time I put on make up was Diwali 2022. Even then I had to support my right hand with my left. The same with clothes. I have a wardrobe full of pretty dresses both Indian and western which have no use anymore. I ha