It's a new new feeling
ALS feels like you are thrown into the deep end of the pool. There are so many new feelings that you feel, most of them unpleasant, so many new situations that you face that no one prepares you for. In fact most of them may be overlooked. That is why I have tried to list them down. Lack of Privacy You can kiss your privacy goodbye because when you need help for anything and everything there will be always someone around you. Not to mention that a bathroom visit is a whole event in itself, so everyone knows when you "go". So embarrassing! Sure you get alone time a lot, but the compromised privacy definitely takes getting used to. Random Touches Thankfully sensory nerves remain unaffected in ALS. But the amount of physical interaction I need because of my limp body is something that I had to get used to. I have to be stood up, sat down, pushed, pulled, transferred, yanked, jostled to be comfortable enough. Wheelchair rides I need a manual wheelchair that has to be pushed...